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Your health data.
Your right. Your responsibility.

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6
Core federal rights every patient holds today
$0
Cost to request your complete electronic health record
30 days
Maximum legal response time for any covered provider
~80%
Of patients who don't know these rights exist
Most patients have never seen their own records. They don't know they have the right. We're changing that — one patient at a time.
What we do

Your complete guide to
patient data rights

From understanding your rights to taking action — built to help every patient take control of their health data.

Your health data belongs to you — not your doctor, not the hospital, not the technology company.
You should have full access to your data — all of it.
You get to decide how your data is shared and with whom.
You can carry your data with you — across systems, providers, and your lifetime.
Your voice comes first — not the defaults of a software system or health network.
Patient rights
Know your rights instantly
Plain-language guides to HIPAA, the 21st Century Cures Act, and every right you hold as a patient — no legalese, no jargon.
Direct Secure Address
patient@directsecure.health
Like email — but for health data. Exchange records securely with any provider.
Get your secure address →
Secure data exchange
Take control of your data
Get a Direct Secure Address and exchange your health records safely with any provider. You decide who has access — always.
Records
Secure
Your data, secured and yours.

Every patient has federally protected rights over their health data. We help you understand them — and act on them.

Download the Health Data Literacy Handbook →

Inform, spark, and empower every patient.

Inform the public
HIPAA, the 21st Century Cures Act, consent, and ownership — explained in plain English, not legalese.
HIPAACures ActConsentOwnership
Spark curiosity
Storytelling and grassroots engagement to build a movement around the questions that matter most.
Where is my data?Who controls it?
Empower action
Real pathways — not just awareness. Become the transporter of your own health information.
Access recordsDirect Secure Address

Knowledge that gives you control

Built around the real questions patients ask — and the specific rights they don't know they have.

Right to access your records
Right to correct errors in your record
Right to privacy & control
Right to file a complaint — without retaliation
2014
Founder launches "I ♥ Data" at Ryan Health, NYC — sparking a conversation about patient data rights that most people didn't know they had.
2016
21st Century Cures Act signed into law — giving every patient the right to their electronic health data, in days, not months.
2023
Information Blocking Rule enforcement expands patient data access rights and accountability nationwide.
Now
I ♥ Data relaunches as a 501(c)(3) national nonprofit movement. The urgency has only grown since 2014.
"I began using I ♥ Data as a message of empowerment — to spark curiosity, start conversations, and help patients realize they have a right to see and understand their own data."
Natacha Fernández, Founder  ·  I ♥ Data
2014
Founded at Ryan Health, NYC
$0
Cost to request your complete records
30 days
Maximum legal response time
~80%
Of patients unaware of their rights
6
Core federal rights every patient holds
Nonprofit
501(c)(3) registered organization
Now
Relaunching as a national movement
2014
Founded at Ryan Health, NYC
$0
Cost to request your complete records
30 days
Maximum legal response time
~80%
Of patients unaware of their rights
6
Core federal rights every patient holds
Nonprofit
501(c)(3) registered organization
Now
Relaunching as a national movement
Who we serve

Built for patients. Built with health systems.

For patients
Your data, your power
Step-by-step guides, plain-language explainers, and real tools — so you can access your records, understand your rights, and speak up when something's wrong. No lawyers needed.
Know your rights →
For health systems & partners
Informed patients. Better outcomes.
We partner with hospitals, clinics, and payers to build cultures of transparency — because informed patients lead to better care, fewer disputes, and deeper trust.
Partner with us →
Join the movement

It starts with
a question.
Where is your data?

Get our free patient rights guide — plain-language, actionable, and yours in 60 seconds.


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